3C: NEW ZEALAND – IMPLICATIONS OF THE BOURNEWOOD GAP
Identifying the Bournewood gap in New Zealand
- The case law under the ECHR and the MCA is highly relevant and likely to be influential in New Zealand courts due to the similarity in the principles – drawn from international and domestic laws – that protect the right not to be arbitrarily detained in Europe and New Zealand.482 New Zealand is not a party to the ECHR, but the European jurisprudence is highly relevant to interpretation of the equivalent liberty rights that are guaranteed by the international human rights instruments to which New Zealand is a party; plus the English common law backdrop to such liberty rights – in the tort of false imprisonment and writ of habeas corpus – has been imported into New Zealand common law.
- It is possible that a similar case to Bournewood could arise in New Zealand, under s 22 of the NZBORA. This is a similar provision to art 5 of the European Convention. In fact, a case concerning informal detention in a dementia unit has already arisen as a complaint under the HDC Code.
- In Taikura Trust,483 Ms A, a 43-year-old woman with a complex history of mental illness and alcohol abuse, was held in a secure dementia unit for almost a year, against her will, without legal authority. Although initially she had been admitted to hospital appropriately, having been assessed as not having the capacity to make decisions relating to her care and welfare, the hospital incorrectly assumed that a personal order under the PPPR Act had been obtained from the Court that covered her care. Despite expressing a wish for a more suitable placement, Ms A was effectively detained for over a year in this dementia unit, against her wishes and contrary to her needs. Moreover, despite her capacity changing over time, she was not reassessed.
- The Health and Disability Commissioner found there was a failure to provide appropriate care, to Ms A under Right 4 of the HDC Code. Regardless of whether there was a court order placing Ms A in the dementia unit, it was still a breach of her right to receive proper care for the healthcare providers not to take the steps to reassess her capacity and address her inappropriate placement in the dementia unit. The case went to the Human Rights Review Tribunal, where the two Auckland service providers who were responsible agreed to pay compensation to Ms A’s estate (as she had subsequently died after her release from unlawful detention).484
- Right 7(4) of the HDC Code,485 based on the common law principle or doctrine of necessity,486 was not specifically relied upon to justify Ms A’s detention in Taikura Trust. Ms A’s initial admission to hospital for care was perhaps defensible on that basis, but her ongoing detention was not. The principle of necessity imposed a clear obligation on the staff, which was not met, to ensure the provision of secure care continued to be in her best interests. Furthermore, even when Ms A objected to her longer-term care, no independent review process was activated, particularly none involving a court or tribunal. Obtaining a retrospective PPPR Act order would not have addressed the problem of there being a lack of safeguards that are intended to operate in advance of the person’s detention or, in this case, Ms A’s ongoing detention. This case therefore illustrates the existence of the Bournewood gap in New Zealand.
- Right 7(4) of the HDC Code is a pragmatic response to the need for everyday decision- making, and for common sense decisions to be made on a short-term basis, for people who, for a range of reasons, are unable to consent to their healthcare. Martin has suggested that Right 7(4) is best seen as a set of protections for consumers who cannot consent to treatment.487 In more strictly legal terms, however, the so-called right provides a defence for health practitioners to HDC Code liability, rather than a safeguard for people who lack capacity and are unable to consent.488 It does not provide procedural protections, or an independent review process, for people who lack capacity on an ongoing basis, concerning decisions such as sedation, forcible restraint, or use of coercion in their detention, whether compliant or not, or concerning decisions about their living arrangements or their forcible transport to a place of residence.
- There will be many instances where the lawfulness of a person’s initial detention in care would be clearly justified under the principle of necessity but the original reasons for their detention may cease to be valid if their condition changes. Their ongoing detention may then become a disproportionate response to the situation, and a breach of s 22 of the NZBORA.489 Moreover, under New Zealand law, the precise situations in which providers may rely on Right 7(4), or must, instead, seek a court order, are not fully clear. In practice, it seems that providers tend not to risk relying on Right 7(4) alone in more contentious cases, such as where a family dispute exists about where to place an older family member, where the person strenuously objects to the proposed arrangements (particularly their admission to a secure dementia unit), and where there is no obvious family member or friend available who is concerned about the person’s long-term interests. In those cases, therefore, more formal legal arrangements may be sought. As a result, providers’ conduct in this regard may be inconsistent and idiosyncratic.490
Current problems and practice
- The lack of legal safeguards to protect the liberties of people with impaired capacity is therefore a major issue for health and disability providers, including clinicians and social workers, particularly those working with people with dementia who are in some form of secure or locked residential care.
- There are also people with milder forms of dementia who may retain some degree of capacity or understanding but, with time, their dementia can expect to progress and their reasoning will deteriorate to the extent they will become unable to contribute to decision-making to any great extent. Furthermore, the “compliant” (or “non-dissenting”) person with dementia may not actively object to their placement, even if it does involve detention, but they may not be able to give meaningful consent to it. Whether detained in a secure dementia unit or in lower levels of hospital or residential care, they will face ongoing care decisions and financial questions concerning their care in circumstances where they are not capable of making, and in some circumstances participating in, decisions affecting them.
- The case studies below, based on real situations, demonstrate the problems encountered when people who lack capacity are placed in residential care or supported living arrangements, and there is no adequate legal process for oversight or review of restrictions on their liberty. In all three cases the people would meet the “acid test” for deprivation of liberty: they are under the continuous supervision and control of those caring for them and not free to leave.491
Case of Mrs A: older adult with dementia – compliant patient needing long-term residential care
- Mrs A492 is a 78-year-old woman who is brought to the hospital after her neighbours found she had fallen over outside her house. She is treated for delirium secondary to infection, but during the course of admission it becomes clear that she has an underlying dementia of at least a moderate degree. In the medical ward she is agitated, wanders, and resists care. On one occasion she flees the ward, apparently concerned that she is in imminent danger. She is subsequently admitted to the psychogeriatric inpatient unit under the MH(CAT) Act.
- Mrs A settles on the ward, but remains at risk of falls and wandering. A visit by staff to her home reveals stockpiled prescribed medication and that she has been incapable of looking after herself or the house. Nevertheless, she now wants to return home without care, although discussions with her establish that she has little real appreciation of her mental and physical problems and the risks associated with them. Mrs A’s family agrees that, on discharge from hospital, she will need residential (and most likely dementia) care. Mrs A has not executed an EPOA and, as is often the case, the facility to which she will go therefore requires a court order to be in place to authorise her admission when she cannot consent to her care.
Discussion
- Mrs A’s circumstance is a common scenario for people with dementia for whom residential care is proposed as part of their care. Even if Mrs A had an appointed attorney under an EPOA, or a welfare guardian, these decision-makers are not necessarily well equipped to navigate the admission or placement process on her behalf, and they may have a conflict of interest concerning the decision to admit her to residential care as their own personal situation may be significantly affected, for better or worse, by that decision. They are not necessarily well placed, therefore, to determine whether admission to residential care is in her best interests. Moreover, even if the Court is involved in ordering Mrs A’s admission, and considers whether a less restrictive intervention is available, a court has limited ability to exercise ongoing oversight of the implementation of a “one-off” personal order of that kind.493
- The health services, in this situation, are often caught in a dilemma, between wishing to discharge someone from a busy hospital ward (to prevent “bed blocking”), and taking the time and expense to seek orders from the court. Going to court may incur delays and may seem to impose an ongoing responsibility to see the court process through to its conclusion, some months later, even though by then the person’s care will have been transferred to another provider.494 The HDC Code requires health and disability services to be of an “appropriate standard of care”, in a manner appropriate to a person’s needs, that optimises their quality of life and with cooperation between providers.495 Practices, therefore, as to when and how to use the court process, vary across DHBs, along with the extent to which DHBs expect their clinicians to rely on Right 7(4) of the HDC Code instead of getting an order from the court.496
Case of Mrs D: refusal to leave home and admission into residential care
- Mrs D lives at home in squalor.497 Community professionals, including her GP, have expressed concerns about her severe cognitive decline. She lives alone, with her adult daughter being her main caregiver, although it is suspected the daughter abuses her mother. Mrs D has poor mobility and there are concerns about her personal care and nutrition (there is no food in the fridge). Mrs D has refused to let the community psycho-geriatric team enter her home, and neither a capacity nor a needs assessment has been undertaken.498
Discussion
- It is not uncommon for older adults to live at home in relatively isolated circumstances with no-one to act for them.499 In this situation where persuasion may not be possible, clinicians may have to decide whether to use the compulsory assessment procedure under the MH(CAT) Act to admit them into care.500 Very often, the person has a family, but the family is fractured and unable to make the necessary application under the PPPR Act for a personal order, or they are unwilling or unable to pay a lawyer to do so.501 There are added complications where there is an abusive relationship, or family conflict, or sizable assets involved.
- A court order – during its life – allows a facility to care for someone in a secure environment, but getting the person to that facility, from their home, can be difficult and involve coercion. It can involve a person being uplifted from their home, being transported against their will, and then being detained in the new environment. This situation is a very different dynamic to where a person has already left their home and has been admitted to hospital for medical care.
Case of Mr G: high level of restriction and living in the community
- Mr G502 is 31 years of age. He has severe autism spectrum disorder, and, although he is unable to verbally communicate, his psychologist says his level of intellectual function is unable to be accurately assessed. He became increasingly difficult to manage at home during his teenage years and now lives in a different town to his parents. He lives alone, but is supported with 24-hour one-on-one staffing by a community trust in a rented house. His welfare guardian is a former carer who has maintained a good relationship with him, and, although moving to another city, has kept in regular contact with his current carers.503
- Mr G poses significant management difficulties. He is at risk of harming himself directly, if unsupervised, through, for example, severe bites to himself, or indirectly, by running out on to the road, and being hit by traffic. To manage his behaviour, his liberty is severely restricted through the use of locks, including deadlocks on his bedroom windows and bedroom door in the house. 504
Discussion
- Mr G is completely dependent upon the community trust that cares for him and has limited contact from his welfare guardian. While the welfare guardian is involved with significant decisions with respect to his care, there is no ongoing oversight of the restrictions on his liberty, or the restraints, that are necessary to manage his care. There is only the trust’s own care plan, including a risk assessment. On occasions, there has been tension between the welfare guardian’s views on suitable restrictions and the community trust’s understandably risk-averse approach to managing his care.505 Mr C is receiving excellent care, but in fact he is subject to greater physical and psychological isolation and restrictions on his liberty than would be the case for some people with an intellectual disability detained with court orders under the IDCCR Act.506
The role of needs assessments
- A complicating factor in all these cases is the needs assessment process and the extent to which such assessments determine the level of care that a person will receive, and correspondingly, the level of restriction imposed on their liberty. A “needs assessment” refers to a clinical assessment (often of an older person or a younger adult with disabilities) to determine their level of functioning and the level of funding they require, in the provision of long-term DHB-funded disability support services. It is usually conducted by the Needs Assessment and Service Coordination service (NASC)507 and occurs around the time a decision is made to discharge a person from hospital or move them to alternative living arrangements. It may effectively determine whether they need secure dementia care or hospital level care, or whether they can remain in their own home with support.508
- The needs assessor considers the person’s mental health and cognitive impairment when assessing their level of functioning, but the process does not purport to be a legal assessment of a person’s capacity for decision-making. The particular NASC can be either a contracted external agency or a department within a DHB, the latter giving rise to the perception, if not the possibility, of a conflict of interest.509
The mental health legislation (MH(CAT) Act) and its interface with the PPPR Act
- While the MH(CAT) Act and the PPPR Act are overlapping regimes, they serve different purposes and operate differently.510 Incapacity to consent to treatment is not required for a person to be subject to the MH(CAT) Act, yet some people are subject to both laws in the course of receiving healthcare, or regarding their living arrangements. An international review has highlighted that there may be at least a third of all patients in healthcare settings, and 45 percent patients in psychiatric settings, who do not have capacity for decision-making.511 When considering how legal safeguards for deprivation of liberty might work, it is therefore important to address the interface between these two regimes.
- Under the MH(CAT) Act, where a person has been certified by two doctors as meeting the complex statutory definition of “mental disorder”, a person can be detained, and assessed, and treated by a psychiatrist (referred to as their responsible clinician).512 Then, after about a month’s assessment, an application can be made for them to be placed under a compulsory treatment order (CTO) – either an in-patient or community order − provided they continue to meet the relevant criteria. The MH(CAT) Act covers only “treatment for mental disorder”, but it authorises various forms of restraint, including detention in order to keep the person safe and to make sure they are receiving the treatment and investigations deemed necessary.513
- Whether undergoing assessment, or receiving treatment under a CTO, the person has recourse to a number of legal protections under the MH(CAT) Act.514 They can challenge their detention (or their compulsory status) before a court while undergoing assessment;515 the CTO itself must be made (and be reviewed after six months) by the Family Court,516 after a hearing, and they can apply periodically to the Mental Health Review Tribunal to be discharged from a CTO if it is made indefinite by the Court.517 A particular concern about the operation of the MH(CAT) Act and relevant to the issue of ongoing detention under this legislation, is the extensive use of the indefinite form of compulsory patient status, when these CTOs are renewed a second time, about a year after the initial order is made. These indefinite orders, and the small numbers of patients who apply to the Tribunal for discharge from them, are described as “a defining feature of the Act” and it is suggested they should be abolished.518
- A person can only be placed under a CTO by the court and they can be provided with legal representation (although many people are not legally represented for this process). Their legal status and detention is kept under oversight by District Inspectors, who have an ombudsman-type role, and are independent of care providers.519 There is also provision for regular review of their legal status by the responsible clinician to ensure they still meet the criteria for detention (or compulsory status) whether detained under an in-patient or an community CTO under the MH(CAT) Act. Sometimes the MH(CAT) Act is used to enforce detention and management of a person with dementia in a residential facility, by placing them under an in-patient order and then placing them on leave, with a specified condition of their leave being that they reside in residential care and comply with mental health treatment.520
- In New Zealand, there is no obvious legal obligation to place compliant, “non-dissenting” patients under this regime established by the MH(CAT) Act. The upshot is that such patients – who may nevertheless be under the continuous supervision and control of those caring for them and are not free to leave – do not have adequate access to an independent process that reviews the necessity for that form of supervised care. These were the exact circumstances that led to the major legal developments in England, specifically the enactment of the DoLS regime.
Monitoring places of detention in New Zealand
- A further aspect to the human rights framework in New Zealand is the national monitoring mechanism for places of detention carried out by a number of government agencies including the Human Rights Commission and the Ombudsman. These mechanisms give effect to New Zealand’s obligations under the United Nations Optional Protocol for the Convention Against Torture (OPCAT).521 Until now, this monitoring has mainly focused on prisoners in correction facilities, and on people detained under the IDCCR Act and the MH(CAT) Act.
- The most recent monitoring report under the OPCAT has expressed concern that there are many situations in which people are deprived of their liberty that are not currently monitored.522 This includes detention in facilities approved by substitute decision-makers, such as detention in locked aged-care facilities, dementia units, compulsory care facilities, community-based homes and residences for disabled persons. Currently, an estimated 138 aged-care providers in New Zealand with locked facilities potentially fall within the scope of OPCAT. The report recommends that the Government review the scope of the OPCAT mandate in New Zealand and identify ways to address the gaps in its monitoring of places of detention.
- A further report in 2014 by the United Nations Working Group on Arbitrary Detention expressed concerns about the protection gaps in New Zealand’s legal framework that exist for older persons in care settings. This report refers to the PPPR Act and the HDC Code as “the only pieces of legislation that are loosely relevant in this context”, and:523
It is clear that these laws do not set out sufficiently detailed processes by which persons lacking legal capacity may become subject to detention.
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